To my butt ugly truthers:
I bet you can all remember the most painful thing that has ever happened to you physically. Just recall for a moment, close your eyes and think back to when you were a kid. What was the worst injury you have ever had? Do you still hurt from it now? What if that pain never ever subsided but just kept getting worse. Day by day, week by week, month by month, year by year that pain that is always even worse than the worst it’s ever been is always getting worse. What would your quality of life be like? For people who suffer from chronic pain conditions, this is what their lives are like. The butt ugly truth about it is that there is only slight and temporary relief for many people who suffer from Reflex Sympathetic Dystrophy/Chronic Regional Pain Syndrome (aka Reflex Neurovascular Dystrophy and Causalgia respectively)
RSD/CRPS are neurological conditions that trigger the pain nerve constantly causing the pain to be amplified. This, in turn, inerrupts the signals of the other nerves. Usually it’s the other way around. I will be adding a page to my site that dedicates awareness for this debilitating, crippling illness gloabally. Our medical communities are not as familiar with this illness as they should be. Patients go years and years to doctors hand over fist desperately seeking a diagnosis, treatment, relief and remission from compassionate medical professionals. Somthing else our medical communities lack.
The butt ugly truth about the way RSD/CRPS patients are treated is, well, practically sub-human at times! There are an uncountable amount of testimonies that paint a portrait of shaming, belittling, hurtful, unprofessional, demeaning providers out there that give little hope to sufferers of ever being diagnosed. Or at least being diagnosed early enough to interrupt it into remission.
I will keep this blog short because I want you to click on the quick definition links on the home page under links to educate yourself on this debilitating illness and just get to the heart of it. If you have been suffering with this condition or just newly disagnosed, there is a support group on Facebook called Here To Help RSD. Here’s the link http://www.facebook.com/#!/home.php?sk=group_146144655432016&ap=1 Join us! This is also a great source of support for caretakers, moms, dads, and kids! Thank you for doing this